Do you ever just get socked in the gut by something?

[Jo]

Today I was reading an email from a group I belong to. One member was writing about a situation. She wrote that her child's neurologist said that one day you are going to wake up and (your child) won't.

It just hit me like a shock wave. I think it hit me harder because they are desperately trying to get their child scheduled for a hemispherectomy. But it just sent me back to when one of the attending neurologists told us that Rai was going to die if she didn't have the surgery. She was just being honest, like their neuro is.

With Rai's seizures coming back, that sentiment is still in the back of my mind. Every day she wakes up, I rejoice because I do feel that in my heart, there will come a day that we will wake up and she won't.

[Brooke]

:squeeze I'm not sure what else to say, but :squeeze

[Jo]

Thanks! I didn't really realize how hard it hit me until I typed that post out and started sobbing so much that Dave ran in to check on me. It was just one of those sneak attack things. Just when you think you have built up every defense you can think of having a special needs child, something proves that wrong.

[Kate]

:squeeze :squeeze :squeeze I wish I knew something that I could say. :squeeze :squeeze :squeeze

[Sarah]

Jo, like everyone else, I don't know what to say. I know that nothing I can say will make anything better, so all I can offer is a hug across cyberspace. :squeeze

[Beka]

:squeeze don't think there are any words as i can't even begin to imagine what it's like

[Erika]

:squeeze

[Emily]

:squeeze :squeeze :squeeze Oh Jo... I wish I had some words of comfort for you. I remember having these thoughts for a long time. It was Kierra's PICU Intensivist (sp?) that threw it out there to me and I still remember how awful I felt when I finally grasped what he was saying. It really did feel like a ton of bricks dropping on me. You know I am only an email or a call away!!!

[Jo]

I am feeling much better this morning. I think I just needed to get it all out. It is one of those things that gets to me even though it isn't something that is probably going to happen today or tomorrow.

Emily-I definitely need to call you and catch up. I will go search out your number . I know it has to be somewhere in my disaster of an office. If not, I will email you! :hugs

[wendygrace]

*big hugs* to you. I completely understand and have btdt.

[Christine]

:hugs I wish there was more I could say... :hugs

[Kristi]

:hugs Jo.

[Jejune]

Jo, many, many hugs. You are much in my thoughts, just in general, but especially now.

[quickmom]

:squeeze :squeeze :squeeze :squeeze